Baby Steps are Tiring

Back in February I wrote about my middle child and some of her sensory and speech problems (here and here). Although we are a little farther than we were then, I still feel like we are going nowhere fast. It took us almost 6 months to get an official OT evaluation and now we sit on a waiting list with no idea of how long we will be waiting. On a happy note, she is still getting speech once a week and we have seen a huge improvement since that started. She has gone from simple “mama” “dada” to 4+ word sentences in the past 6 months (Example- “Ma eep buh buh-ya” meaning that she wants to eat bread and butter). But some sentences are easier to understand than others so with that has come continued frustration when we don’t understand her and she is starting to get stuck on words and repeat them several times before continuing with her sentence. We saw a psychologist last month to rule out autism and she while she was cleared with no signs of autism at all she was diagnosed with unspecified disruptive behavior disorder on top of the SPD and apraxia. Now we go tonight to meet with a LPC about behavior therapy as well as parent therapy.  The psychologist who did the autism screening also recommended looking into a 3 year old pre-k program for developmental delay so we took the first step towards that this morning with a hearing and vision screening. She completely shut down so they were not able to complete either screening so I’m hoping we are still able to move forward smoothly. I know we are in fact moving forward on everything but sometimes it just really feels like we are doing nothing more than running in place.


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